Making the Invisible Visible. One Voice at a Time.
The Endo-Visible Foundation is a 501(c)(3) nonprofit organization dedicated to raising awareness, advancing education, and providing safe spaces for those living with endometriosis—a chronic, whole-body inflammatory illness that affects 1 in 10 women and often goes undiagnosed or dismissed.
OUR MISSION
To break the silence and stigma surrounding endometriosis by empowering individuals with knowledge, support, and community. Through storytelling, advocacy, and visibility, we strive to uplift those affected and drive meaningful change in how endometriosis is understood and treated.
Why “Endo-Visible”?
Endometriosis is often called the invisible disease by the World Health Organization (WHO)—its pain hidden beneath the surface, its impact misunderstood, and those who suffer from it too often unheard.
We chose the name Endo-Visible Foundation because our mission is to change that. We exist to make endo seen, to give voice to the millions living with this chronic, life-altering condition, and to build a world where women’s pain is no longer ignored.
“Endo-Visible” is a promise to break the silence and bring visibility to what has too long remained unseen. It's also a subtle play on the word indivisible, showing that we by coming together we become stronger, always.
The Endo-Visible Vision
⚔︎ Early Diagnosis for All
We envision a future where endometriosis is recognized early, not after years of suffering. Every person deserves access to timely diagnosis, compassionate care, and providers who truly listen.
⚔︎ Early Education & Empowerment
We believe early education is critical. By reaching girls as young as junior high and high school, we aim to break the silence around reproductive health and help the next generation understand what is and isn’t normal when it comes to their bodies. Early intervention can change lives, reduce suffering, and empower young people to advocate for themselves sooner.
⚔︎ Widespread Education
From classrooms to clinics, we advocate for education that empowers patients, informs practitioners, and spreads awareness of endo and its impact on every part of the body and life.
⚔︎ Financial Access to Real Care
What makes us different is our commitment to action. We understand that living with endometriosis is not just painful — it’s also incredibly expensive. Our long-term goal is to raise enough funds to directly support those with endo in accessing the specialized care they need, especially excision surgery — the gold standard of treatment, and yet so often not covered by insurance. Every person deserves access to healing, regardless of their income or insurance status.
⚔︎ Advancing Medical Research
We champion greater investment in medical research to uncover better treatments and ultimately a cure for endometriosis and adenomyosis. Science should no longer ignore women’s pain.
⚔︎ Policy & Legislative Change
We are committed to driving legislative efforts that protect the rights of those living with endometriosis, increase healthcare funding, and ensure systemic support for the invisible yet life-altering condition.
Donate Today
Whether you're an endo warrior, or someone who loves one—a mother, sister, partner, or friend—it’s heartbreaking to watch someone suffer with so few options available.
The Endo-Visible Foundation exists to change that.
Through advocacy, awareness, community, research, and legislative reform, we’re on a mission to make this “invisible” disease visible. To ensure no one else has to suffer in silence the way so many of us have.
About Our Founder, Katya Karlova
Katya Karlova is a speaker, author, model and advocate whose journey with endometriosis and adenomyosis turned personal pain into global purpose. After building a decorated career as a Vice President in the corporate world, Katya redirected her path to raise awareness for the millions living with this misunderstood and often invisible illness.
Born in the Republic of Moldova and educated at UCLA, NYU, and University College London, Katya’s life has always been rooted in justice, healing, and amplifying unheard voices. Her award-winning leadership, powerful storytelling, and unshakable spirit have made her a force for change.
Today, she channels her vision into the Endo-Visible Foundation, a 501(c)(3) nonprofit committed to breaking the silence around endometriosis. Through advocacy, education, and community care, Katya continues to empower others to be seen, heard, and believed—because every endo warrior deserves a voice, and every story deserves light.
Endo Unfiltered: Read Our Most-Viewed Articles
The Endo Unfiltered blog is your go-to source for endometriosis insight and support.
What is Endometriosis and Adenomyosis? The Important Facts You Need to Know.
Why Did It Take Me Over 2 Decades To Get Diagnosed With Endometriosis?
Ten Medical Myths: Endometriosis Facts vs. Fiction
